The Vascular Disorder Women Are Misdiagnosed With for Years

What if your chronic pain, bloating, or fatigue wasn’t in your head, but in your blood vessels? In this episode, Dr. Linda Bluestein sits down with vascular surgeon Dr. Robert Hacker, who’s on the front lines of diagnosing and treating complex conditions like MALS (Median Arcuate Ligament Syndrome), Nutcracker Syndrome, May-Thurner Syndrome, and pelvic venous congestion syndrome, conditions that disproportionately affect women and often go undiagnosed for years. Together, they dive into the frustrating diagnostic delays, the overlap between vascular compression and syndromes like POTS (Postural Orthostatic Tachycardia Syndrome) and EDS  (⁠Ehlers-Danlos Syndrome)⁠, and how new surgical approaches are offering hope. Whether you're navigating chronic pelvic pain, unexplained GI symptoms, or fainting episodes, this conversation breaks down the misunderstood links between your veins, nerves, and connective tissue—and what to do about them. Takeaways: MALS isn’t rare, it’s rarely diagnosed. Dr. Hacker explains the symptoms and scans to look for when your gut symptoms don’t match the tests. Why so many women are misdiagnosed with IBS or anxiety. Pelvic venous congestion, Nutcracker Syndrome, and May-Thurner often mimic more common conditions—but require totally different treatments. The surprising connection between vascular compression and POTS. It’s not just nerves, your veins might be compressing in ways that worsen dysautonomia. Surgery isn’t a silver bullet, but it can be life-changing. Dr. Hacker shares what makes a good surgical candidate and how his team helps patients navigate workup and recovery. When your connective tissue works against your vascular system. Hypermobility and EDS can make vascular compression more likely and more complicated to treat. Note: Video footage shared was recorded independently by Dr. Hacker. It was added to this podcast interview to help with understanding the concepts presented. It is highly recommended, however, to visit his Instagram page for the voiceover explanations that best match what is being shown. Want more Dr. Robert Hacker? Instagram:   / stlvascular   Go to ⁠cozyearth.com⁠ and use my Promo Code: BENDYBOGO Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube:    / @bendybodiespodcast   Instagram: ⁠⁠⁠⁠  / ⁠⁠⁠⁠   Facebook: ⁠⁠⁠⁠  / bendybodiespodcast⁠⁠⁠⁠   X: ⁠⁠⁠⁠  / bluesteinlinda⁠⁠⁠⁠   LinkedIn: ⁠⁠⁠⁠  / ⁠⁠⁠⁠   Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobi... Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hyp... Go to Cozy Earth now for a Buy One Get One Free Pajama Offer from 1/25-2/8! Yes, go to cozyearth.com they are doing a BOGO pajama promo. Just use my Code: BENDYBOGO Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www\.bendybodiespodcast\.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www\.human-content\.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠[email protected]⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Chapters: 00:00 Introduction to Bendy Bodies Boutique 00:31 Understanding Vascular Pain and Surgery 01:07 Welcome to the Bendy Bodies Podcast 01:32 Introducing Dr. Robert Hacker 03:28 Dr. Hacker's Journey into EDS 07:07 Symptoms and Misdiagnoses in Vascular Conditions 23:47 Imaging and Diagnostic Techniques 31:26 Treatment Options and Patient Experiences 33:06 Exploring POTS and Pelvic Venous Congestion 37:48 Understanding MCAS and Connective Tissue Diseases 38:17 The Role of Sympathetic and Parasympathetic Systems 40:28 Pelvic Venous Congestion in Males vs. Females 43:21 Treatment Options for Compression Syndromes 56:03 Challenges in Diagnosing and Treating POTS 57:42 Finding the Right Clinician and Practice 01:03:52 Final Thoughts and Practical Tips 01:10:13 Conclusion and Resources