Trastornos cognitivos. Cuidando al enfermo de Huntington
Do you feel that your loved one has become grumpy, impulsive, or lacks initiative? Often, cognitive impairments in Huntington's disease are harder to accept than motor problems because they affect the very essence of the person [00:23]. In this video, I share my personal experience with Carmen: from memory problems and a lack of planning, to those moments of "spark" and impulsiveness that are so exhausting for us as caregivers [05:31]. It's not that they don't want to; it's that their brains can no longer process information in the same way. 🕒 Guide to understanding what you can't see: [00:23] Why cognitive impairment hurts more than motor impairment: The challenge of identifying it. [01:12] Implicit memory problems: When gestures like chewing or swallowing are forgotten [01:37]. [02:01] The difficult decision to stop driving: Safety first. [02:18] Lack of perception of reality (Anosognosia) and social disinhibition. [03:11] Loss of planning ability: The example of cooking recipes [03:28]. [04:36] The importance of routines and giving advance notice of changes [05:04]. [05:31] Managing impulsivity and anger: How not to take it personally [06:23]. [07:07] Difficulty multitasking: Why do they stop talking while walking? [07:16]. [07:38] Perseverance and getting stuck in a loop: How to redirect attention [08:10]. Patience is our best tool, but understanding that it is the illness that speaks, not them, frees us from a great emotional burden [08:47]. 🔗 Let's continue learning together: 👉 More experiences on my blog: www.vivirconella.com 👉 Subscribe to raise awareness of Huntington's disease: @vivirconella #HuntingtonsDisease #CognitiveDisorders #Caregivers #MentalHealth #CognitiveDecline #LivingWithIt #CaregiverPsychology https://www.vivirconella.com Acknowledgements: To the Spanish Huntington's Disease Association (ACHE) and especially to: Marta Fatás, Neuropsychologist. Dolors Galarza, Nurse and Speech Therapist. Erica Orejas, Resident Physician in Rehabilitation and Physical Medicine Javier Guerreira, Social Worker. for creating the Basic Guide, which clearly, simply, and practically helps to better understand what Huntington's disease means.

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