Wie ist es, die eigenen Kinder zu pflegen? | Der unsichtbare Alltag pflegender Eltern

Suddenly parents of children with disabilities. Suddenly caregivers. What does that mean for families? In this report about caregivers, we follow the Viebahns – a family of six whose daily life is marked by extraordinary responsibility. The two oldest children, Jascha and Piet, twins with severe multiple disabilities, are both intellectually and physically impaired. A rare genetic defect necessitates comprehensive medical care and intensive nursing for both of them. The film shows honestly and intimately what it means to care for children with disabilities – around the clock, even beyond one's own limits. The camera accompanies the family through their daily caregiving routine, from diaper changes in the morning to feeding at midday and the nightly routine in the evening. What is family life like with children with disabilities, balancing organization, emotions, and hope? The focus is on Sven and Ines as parents and caregivers. They take on the responsibility of providing care at home, coordinating therapies and support for their children with disabilities, and simultaneously striving for normalcy. Topics such as anxieties about the future, assistive devices, and the burden of caregiving are addressed openly. This documentary reveals what often remains hidden: life with a disabled child, the challenges of multiple disabilities, the emotional strength of families with children requiring intensive care, and the societal importance of disability support and inclusion. 00:00 Intro 00:45 Meeting Ines & Sven 01:51 Preparing Breakfast 03:09 Morning Care Routine 07:19 Wheelchair Taxi Service 09:45 Sven and Ines's Faith in God 11:14 School End for Jascha & Piet 12:33 Lunch at the Viebahns' 14:54 Midday Care Routine 15:17 Will My Children Die Before Me? 16:43 Trip to the Playground 20:29 Dinner at the Viebahns' 23:53 Washing, Diaper Changing, Getting Dressed 24:24 I Love You, Mom. 25:38 Conclusion: Everyday Family Life with a Disability This report is aimed at: • Parents and family caregivers • Families with children with disabilities • People who want to learn about genetic defects, intensive care for children, or home care • Professionals in nursing, therapy, medicine, and social work • Viewers looking for authentic caregiving documentaries and reports Parents providing care do incredible things day in and day out. This report gives them space, visibility, and a voice – and fosters understanding for the lives of families with intellectual and physical disabilities. Licenses: WVGRHVGQPAA9W9KO Q32YR6A2B8QTIECU IBHNDL0ZSJFL9A85 7LKCJLL9ZXAUI1GN QCLB4TICM3W03RFX IIFFBKVQTU4KGOPJ FWHWJD5ALU1QXJXP BRPDZZZU3ECWVYAO