MCAS, Post-Viral Concerns, hEDS, POTS, and Conditions Impacting Spinal CSF Leak, by Dr. Ilene Ruhoy

This talk about comorbid conditions like EDS, MCAS, POTS, and more, which can impact spinal CSF leak treatment and healing, was given by Dr. Elena Ruhoy at the 2nd annual Spinal CSF Leak: Bridging the Gap Conference on November 2-3, 2024, in Aurora, Colorado. This conference is a partnership between the Spinal CSF Leak Foundation and Dr. Andrew Callen and the University of Colorado Anschutz Medical Campus. Please see our conference landing page for more about this event: https://spinalcsfleak.org/conferences... 0:00 - Introduction 1:47 - Mast Cell Activation Syndrome (MCAS) 7:59 - Postural Orthostatic Tachycardia Syndrome (POTS) 12:45 - Hypermobility Ehlers Danlos Syndrome (hEDS) (and Other Connective Tissue Disorders) 15:32 - Heritable Connective Tissue Disorders (HCTDs) 20:38 - Cranial Cervical Instability (CCI) 23:04 - Jugular Venous Compression 24:52 - Post-Viral Syndromes 29:33 - Autoimmune Disease/NeuroImmune Dysregulation

Neuropsychiatric Manifestations of Mast Cell Activation Disease (MCAS) - Dr. Anne Maitland - ASAP
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Neuropsychiatric Manifestations of Mast Cell Activation Disease (MCAS) - Dr. Anne Maitland - ASAP

Postural Orthostatic Tachycardia Syndrome: A Common Co-Morbidity in Patients with Spinal CSF Leak
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Postural Orthostatic Tachycardia Syndrome: A Common Co-Morbidity in Patients with Spinal CSF Leak

Recognizing Pediatric Hereditary Hematologic Malignancies (June 2026)
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Recognizing Pediatric Hereditary Hematologic Malignancies (June 2026)

A Better Understanding of Barriers to Care in Spinal CSF Leak — Dr. Andrew Callen & Jodi Ettenberg
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A Better Understanding of Barriers to Care in Spinal CSF Leak — Dr. Andrew Callen & Jodi Ettenberg

The Link Between MCAS, POTS, and EDS with Dr. Leonard Weinstock
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The Link Between MCAS, POTS, and EDS with Dr. Leonard Weinstock

2021 Lectures: The Pentad Patient: Ilene S Ruhoy, M.D., PhD
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2021 Lectures: The Pentad Patient: Ilene S Ruhoy, M.D., PhD

Have EDS or HSD? Why MCAS May Worsen Your Symptoms | Dr. Clair & Dr. Harris
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Have EDS or HSD? Why MCAS May Worsen Your Symptoms | Dr. Clair & Dr. Harris

All About Sjögren's
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All About Sjögren's

Epidural Blood Patching of spinal CSF leaks
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Epidural Blood Patching of spinal CSF leaks

Neurovascular Dysregulation During Exercise in ME/CFS and Long COVID
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Neurovascular Dysregulation During Exercise in ME/CFS and Long COVID

The Role of MCAS in Long Covid | With World Leading Specialist Dr Lawrence Afrin
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The Role of MCAS in Long Covid | With World Leading Specialist Dr Lawrence Afrin

Reversing Brain Fog & Inflammation with Dr. Ilene Ruhoy (Ep 132)
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Reversing Brain Fog & Inflammation with Dr. Ilene Ruhoy (Ep 132)

Sjogren's: The Second Most Common Cause of Dysautonomia
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Sjogren's: The Second Most Common Cause of Dysautonomia

Dysautonomia Explained: POTS, Diagnosis, & Treatment with Lauren Stiles | Episode 12
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Dysautonomia Explained: POTS, Diagnosis, & Treatment with Lauren Stiles | Episode 12

Overlapping Syndromes in Spinal CSF Leak, by Dr. Illene Ruhoy
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Overlapping Syndromes in Spinal CSF Leak, by Dr. Illene Ruhoy

#3 2025 08 23 Cancer Center Lynch Syndrome Symposium   Preventing Cancers in Lynch Syndrome
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#3 2025 08 23 Cancer Center Lynch Syndrome Symposium Preventing Cancers in Lynch Syndrome

RN with POTS, Sjogren's Syndrome, Lupus, MCTD In Remission, How? Maggie Yu, MD
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RN with POTS, Sjogren's Syndrome, Lupus, MCTD In Remission, How? Maggie Yu, MD

2025 Bridging The Gap Conference – Q&A 4 – General Questions
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2025 Bridging The Gap Conference – Q&A 4 – General Questions

Pete Marnick - Life with a Cerebrospinal Fluid (CSF) Leak
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Pete Marnick - Life with a Cerebrospinal Fluid (CSF) Leak

Dr. Arina Bingeliene - Pediatric Sleep Education Day - Saturday, May 23, 2026
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Dr. Arina Bingeliene - Pediatric Sleep Education Day - Saturday, May 23, 2026