a REAL disease, NOT imagined. The Ehlers-Danlos syndromes (SED)

IMAGINE spending years, or even your entire life, trying to figure out what is wrong with you while being told “it’s all in your head”. The Ehlers-Danlos Syndromes (EDS), are complex connective tissue disorders that are frequently misunderstood and stigmatized within the healthcare system. This Canadian documentary explores the difficult reality of living with EDS, focusing on the common experience where patients spend years searching for an accurate diagnosis and adequate care. Through testimonials from patients and healthcare professionals, this project seeks to shift medical attitudes to ensure those affected receive the same quality of services as any other patient. Ehlers-Danlos syndrome is not an imaginary disease! This documentary was produced by the Regroupement québécois des maladies orphelines (RQMO)/Quebec Coalition of Orphan Diseases with the collaboration of the EDS Canada Foundation. It was directed by Gail Ouellette, PhD., genetic counsellor, and expert on EDS.