Living With Fibrous Dysplasia
Living with #fibrousdysplasia is challenging, especially as there is no direct cure. In this video, we sit with Pel, who shares the socio-economic and psychological challenges that come with living with such a rare illness. #RareDiseasesInNigeria ⏱️ TIMESTAMPS ⏱️ 00:00 Introduction to Pel 02:00 Fibrous Dysplasia Explained 03:30 Early Symptoms and Diagnosis 06:00 Medication Challenges 08:00 Medicalization and Misdiagnosis 10:00 Mental Health Impact 12:00 Societal Exclusion 14:00 Vision for the Future
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