What is USHER SYNDROME Type 3, my experience | Rebecca Alexander on Just Interesting People

🎙 Just Interesting People - Episode 136 with Rebecca Alexander Rebecca is an author (Not Fade Away: A Memoir of Senses Lost and Found), psychotherapist, public speaker (including a TedTalk), group fitness instructor, extreme athlete and disability right advocate... yes, all of that! She also has a genetic disorder called Usher Syndrome type 3, which causes her to go deaf and blind. Rebecca first started losing her sight at age 12, then her hearing a few years later. She now reads brail, is fluent in sign language and protactile sign language. Rebecca talks to us about her journey discovering Usher Syndrome, how she coped with changes in her body as a teen but also how she is doing lots of fun things to enjoy life now (and as she says, "to feel alive") while she still has her sight and hearing (including hiking Mount Kilimanjaro). Rebecca shares with us why it is important for her to raise awareness for her community and how important it is to find your community. Plus we talk about inspiration porn and how disabled people are just people doing normal things. We loved this conversation and hope you do too. Link to the episode: https://justinterestingpeople.com/136 ------------------ 🙏 If you enjoy watching/listening to our podcast and would like to join our VIP community & to support us, check out our Buy Me a Coffee page: https://www.buymeacoffee.com/jippodcast 🎧 Listen to the podcast (and the first 103 audio-only episodes) Spotify: https://open.spotify.com/show/7seLeBF... Apple Podcasts: https://podcasts.apple.com/us/podcast... Google Podcasts: https://podcasts.google.com/feed/aHR0... 💻 Our website: https://justinterestingpeople.com 📲 Follow Just Interesting People on Social Media On Instagram:   / justinterestingpeople   On Twitter:   / jip_podcast   On Facebook:   / justinterestingpeople   On Linkedin:   / 68643790  

From LAWYER to YOGA studio owner | Yanti Amos on Just Interesting People
▶︎

From LAWYER to YOGA studio owner | Yanti Amos on Just Interesting People

H.E.L.P. - Humanity's Essence, Living Proof | Rebecca Alexander | TEDxCapeMay
▶︎

H.E.L.P. - Humanity's Essence, Living Proof | Rebecca Alexander | TEDxCapeMay

Inside Rebecca Alexander’s campaign for disability rights
▶︎

Inside Rebecca Alexander’s campaign for disability rights

Raising awareness of Usher syndrome with Jo Milne
▶︎

Raising awareness of Usher syndrome with Jo Milne

Stuart's Experience of Addiction and Recovery - EPISODE 1
▶︎

Stuart's Experience of Addiction and Recovery - EPISODE 1

Usher-Syndrom: Hanna droht Blindheit | hessenschau
▶︎

Usher-Syndrom: Hanna droht Blindheit | hessenschau

What is STOCKHOLM SYNDROME?
▶︎

What is STOCKHOLM SYNDROME?

Keynote Speech ACE 2015 - Rebecca Alexander
▶︎

Keynote Speech ACE 2015 - Rebecca Alexander

Research Updates from Usher Syndrome Society Sponsored Projects
▶︎

Research Updates from Usher Syndrome Society Sponsored Projects

Spine Surgeon Drowns for 30 Minutes —Comes Back With a List
▶︎

Spine Surgeon Drowns for 30 Minutes —Comes Back With a List

Ellie Middleton details impact of late AuDHD diagnosis
▶︎

Ellie Middleton details impact of late AuDHD diagnosis

Oprah and Iyanla Vanzant on Daily Care for Your Spiritual Hygiene
▶︎

Oprah and Iyanla Vanzant on Daily Care for Your Spiritual Hygiene

How a vibrating vest helps deaf people hear - The Cure
▶︎

How a vibrating vest helps deaf people hear - The Cure

S13 E17: Trump’s Reflecting Pool, Redistricting & Soaps: 6/28/26: Last Week Tonight with John Oliver
▶︎

S13 E17: Trump’s Reflecting Pool, Redistricting & Soaps: 6/28/26: Last Week Tonight with John Oliver

Catholic Mass 101: Learn Every Part of the Mass and What It Means (w/ Fr. Mike Schmitz)
▶︎

Catholic Mass 101: Learn Every Part of the Mass and What It Means (w/ Fr. Mike Schmitz)

The Frank Zappa Interview That Still Feels Dangerous Today (1984)
▶︎

The Frank Zappa Interview That Still Feels Dangerous Today (1984)

Usher Syndrome, Conner & Dalton McKittrick, Hear See Hope
▶︎

Usher Syndrome, Conner & Dalton McKittrick, Hear See Hope

Katie Kelly -  "Patient Story of Usher Syndrome"
▶︎

Katie Kelly - "Patient Story of Usher Syndrome"

DeafBlind people are creating a new language | American Masters | PBS
▶︎

DeafBlind people are creating a new language | American Masters | PBS

Webinar: Usher syndrome mini series – part one
▶︎

Webinar: Usher syndrome mini series – part one