Vivre sans peur Mon parcours au delà de la peur et des limites

My name is Amélie. I have an extremely rare genetic condition. So rare, in fact, that there are only about 400 known cases worldwide… and I’m one of them. Growing up with this reality has never been easy. Every day is a challenge, filled with uncertainties, medical appointments, and unanswered questions. Sometimes, I feel different, like I live in a world apart, far from the normalcy that others seem to have. Subscribe to This Is My Story: https://bit.ly/3toqZdl Watch more stories: https://bit.ly/3lQjAiw Follow us on: TikTok: https://bit.ly/3LUrmmj Facebook: https://bit.ly/3N1UdXe Instagram: https://bit.ly/3PMQuyb