Ácido valproico en el embarazo: Las secuelas en mi hijo | INEXPLICABLE

Santiago's story begins with his premature birth at 26 weeks in Bogotá, weighing just 936 grams. This marked the start of a complex medical journey, influenced by the use of anticonvulsant medications during pregnancy and culminating in the diagnosis of a rare disease known as White-Sutton syndrome. Over the course of nine years, the protagonist has faced multiple interventions, from the loss of part of his left lung to tracheal damage from prolonged intubation. The story recounts the transition from a lung tumor initially considered benign to a malignant diagnosis, forcing the family to undergo further surgeries and a constant dependence on oxygen. The narrative delves into the reality of a mother dedicated to the total care and support of a family that perseveres through digestive, sensory, and mobility complications. 0:00 Intro 0:51 What is White-Sutton Syndrome? 1:19 Risks of Valproic Acid in Pregnancy 2:11 Premature Birth and Months in the NICU 3:29 First Crises and Pneumonia Diagnoses 4:23 Tracheal Injuries from Intubation 5:23 The Discovery of the Lung Tumor 6:00 Santiago's Mobility and Vision Challenges 6:26 Digestive Complications and Gastrostomy 7:34 Change of Diagnosis: The Tumor is Malignant 8:20 How the Syndrome Affects the Organs 9:14 Family Dynamics and 24/7 Care 10:00 Love and Faith in the Midst of the Struggle #inexplicable #inexplicablepodcast #White-SuttonSyndrome #rareDiseases #PrematureBabies #ChildhoodCancer #LifeWithWhite-SuttonSyndrome #MedicalDiagnosis #HelpForSanti #DisabilityBogota #HelpForSantiago #valproicacid Credits: Carlos Andrés Díaz V. - Journalist/Presenter Katterinne Castillo S. - Director Sayyid Ovalle - Audiovisual Producer David Sánchez B. - Producer Angello Rodríguez R. - Editor Pamkachito - Graphic Designer Valproic Acid in Pregnancy: The Consequences for My Child | INEXPLICABLE Channel operated and optimized by Tu Catapulta