ERN eUROGEN Webinar 144: Long term continence issues in Hirschsprung disease

This webinar was presented on the 24th of June as part of the colorectal webinar series that is organised by ERN eUROGEN and ERNICA. The webinar was presented by Dr Alessio Pini Prato who is a specialist in Pediatric Surgery, Director of Mother and Child Health Department, Director of Pediatric Surgery Unit at the AOU SS Antonio e Biagio e Cesare Arrigo hospital in Alessandria, Italy. He was accompanied by Dr Silvia Tufano who is a specialist in Physical and Rehabilitation Medicine with clinical and research focus on pediatric and pelvic perineal rehabilitation. She works at the Rehabilitation Unit, of the same centre in Alessandria, Italy. During the webinar, the following was discussed: Hirschsprung's disease (HSCR) is a rare congenital disorders of the intestine. Functional prognosis is poor after surgical treatment and the impact on patients' quality of life is significant due to bowel dysfunctions such as constipation or fecal incontinence. Incontinence could be the consequence of different aspects related to weak anal sphincter and perineal muscles, intestinal hypermotility, or constipation with overflow incontinence. A pelvic floor rehabilitation program with multidisciplinary care can improve bowel function, lowering the rate of faecal incontinence and allowing easier socialization. Pelvic floor Muscle (PFM) training helps children to understand how to coordinate and relax the PFM. These exercises are meant to be performed also at home to consolidate the improvement. A personalised and non-invasive rehabilitation program already demonstrated good outcomes for congenital bowel disease, improving the management of continence in paediatric population. Timestamps: 00:00 CPMS & contact information 00:25 Introduction by ERN ERNICA Project Manager 02:34 Presentation by Alessio Pini Prato 11:40 Presentation by Silvia Tufano 29:46 Questions The Colorectal webinar series covers all aspects of paediatric colorectal surgery. They are joint presentations between ERNs eUROGEN and ERNICA and are supported by both EUPSA and ARM-Net. eUROGEN is the European Reference Network for rare and complex urogenital diseases and conditions. Our multidisciplinary teams of experts are able to diagnose, suggest treatment or surgery, and then provide post-operative and transitional support. We have full members and affiliated partners across the majority of EU Member States. For more information or to contact us: Web: www.eurogen-ern.eu Email: [email protected] LinkedIn:   / ern-eurogen   Twitter/Instagram: @ERN_eUROGEN Facebook:   / erneurogen   YouTube: https://bit.ly/eUROGENyoutube ERN eUROGEN is a European Reference Network (ERN) approved by the ERN Board of Member States (BoMS). For more information about the ERNs and the EU health strategy, please see https://health.ec.europa.eu/european-... The ERNs are funded by the European Union. The views and opinions expressed in this webinar are those of the author(s) only and do not necessarily reflect those of the European Union or HaDEA. Neither the European Union nor HaDEA can be held responsible for them. ERNICA is the ERN for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies (https://ern-ernica.eu). ARM-Net is a group of professionals and patient representatives that aim to exchange data and knowledge to improve clinical care and to perform research on congenital anorectal malformations (https://www.arm-net.eu). EUPSA promotes surgical care for the paediatric patients in Europe and enhances the capacity of its members to gain new knowledge to the benefit of their patients, along the highest ethical standards in paediatric surgery (www.eupsa.info).