Exploring Caregiver Guilt (Part 1) | CDKL5 in Color podcast | Episode 42

Parent caregivers overwhelmingly want to do their best when caring for their child, but medical complexities, jam-packed appointment schedules, behavioral challenges, and systems that can seem like more of a burden than a support can leave caregivers feeling all sorts of unpleasant feelings about their role. In this special three-part series of the podcast for CDKL5 awareness month, we are exploring a common and harrowing emotion that many caregivers feel - guilt. We asked our peer CDKL5 caregivers the question, What have you felt guilty about in your role as caregiver? In part one of this series we explore feelings of guilt related to feeling like we are not doing enough. We’d love to hear your comments or feedback. Thanks for listening. Check out our website and sign up for our newsletter - www.CDKL5inColor.com Follow us on Facebook, Instagram, LinkedIn, & Blue Sky! #CDKL5 #CDKL5inColor #CDKL5Stories View complete show notes and listen for free on Spotify: https://open.spotify.com/show/4oxNoHl...