How has the Marfan diagnosis affected your family?
Teens with Marfan syndrome and related disorders from all over the country came together at a recent Marfan Foundation annual family conference to share their thoughts about issues likely to be of concern to all teens with these conditions. Their honesty and insights are also sure to be eye-opening for parents of teens living with Marfan syndrome and related disorders. Teens who want to get connected to our teen group can email [email protected]
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My Health (Possible Marfans Syndrome or POTS)
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What it’s like being a child with Marfan Syndrome
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When and how do you decide to tell people about having Marfan syndrome?
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How can The Marfan Foundation conference help families with Marfan Syndrome?
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