These Braces Will Change Mason's Life (AFO & Night Splints)
Ever wonder how AFOs and Night Splints help kids with DMD? Today Mason takes a giant leap forward (Thanks to Shriners Children's Hospital)! We are also faced with Jack's Exondys program changes, but we see progress with his treatment! Mason's AFO/Night Splint Fitting 👉🏻: • Custom Leg Braces (AFOs) & Log-Rides! Disclaimer: This is not medical advice. These videos simply serve as documentation surrounding this treatment and decisions we've made, as parents, to potentially better the lives of our children. ==================== What's Elevidys? Elevidys is a gene therapy from Sarepta. It's the first gene therapy FDA approved for pediatric patients (4-5 years old) with Duchenne muscular dystrophy. Sarepta has also produced Exondys 51. HUGE THANK YOU to Sarepta (Elevidys) and the Seattle Children's Hospital!!! ==================== Hey! If we're meeting for the first time- We are the Bafus family, and we are starting this YouTube channel to give hope, document our journey, and to shine light on duchenne muscular dystrophy. For our first 7 days, we posted one video a day, documenting Mason's $3.2 million, once in a lifetime gene therapy. You can watch that here ➡: • Mason's Gene Therapy ==================== We are typically private people, just like you, but this disease has forced us more into the public, and that's ok. We've learned that this is not a disease that anyone can fight alone. So we decided to take to YouTube to help spread the message and raise awareness of this rare disease. You can follow us here 👇 / bafusfamily / @bafusfamily #afo #dmd #familyvlog

Custom Leg Braces (AFOs) & Log-Rides!

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