10 Months with Ramsay Hunt Syndrome: Continued Issues, Synkinesis, Alternative Therapies
Here is my 10 month update on Ramsay Hunt Syndrome sharing what’s improved, what hasn’t, and how I’m navigating recover. In this video, I cover: • Where my facial function and synkinesis are at 10 months post-diagnosis • The role of facial physical therapy in my progress • Alternative and adjunct therapies I’m exploring, including red light therapy, supplements, and hyperbaric oxygen treatment • My mental health and how I keep a positive attitude • Communities and thoughts on how community can help Chapters 0:00 Introduction 0:34 Summary of current issues 1:31 Facial paralysis therapy 3:05 Palsy check 4:33 Synkinesis issues 4:57 Alternate therapies: supplements, acupuncture, red light therapy, investigating hyperbaric oxygen therapy 8:32 Mental health with chronic illness 11:35 Communities for Ramsay Hunt and the power of community Disclaimer: I’m not a medical professional—just someone sharing a real-life experience. Resources I've found helpful: Mayo Clinic Ramsay Hunt Syndrome https://www.mayoclinic.org/diseases-c... NIH Ramsay Hunt Syndrome (this is a long, deep read) https://www.ncbi.nlm.nih.gov/books/NB... Wikipedia Article https://en.wikipedia.org/wiki/Ramsay_... Ramsay Hunt Syndrome Foundation https://www.ramsayhuntfoundation.org/ Ramsay Hunt Syndrome Facebook Support Group / ramsayhuntsyndrome Book Fix My Face: Expert Advice for Maximizing Recovery from Bell’s Palsy, Ramsay Hunt Syndrome, and Other Causes of Facial Nerve Paralysis https://www.amazon.com/Fix-My-Face-Ma...

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