21 July 2021 - Dr Richard Milne - Trust and trustworthiness in genomic data sharing

Who do we trust with genomic data about us, and what might we do to build trust? Richard Milne presents what we've learned from the Your DNA, Your Say study. The development of genomic medicine relies on the willingness of individuals around the world to make data about themselves available to researchers and clinicians. Trust in these researchers and clinicians is thus an important factor in shaping the success of genomics initiatives. In this seminar, Dr Richard Milne, Senior Social Scientist in the Society and Ethics Research Group at Wellcome Connecting Science, discusses what we have learned from the Your DNA, Your Say study about public trust and how it is distributed across the 22 countries of the study. Richard also discusses recent work in which we explore the characteristics associated with trustworthy data users. Richard is also a Senior Visiting Research Fellow in the Department of Public Health and Primary Care at the University of Cambridge. His research focuses on social and ethical questions associated with the development of medical technologies, particularly related to Alzheimer’s disease and biodata.