L’interview #60 • Marjorie, vivre en dent de scie | Vivre avec la maladie Invisible

Marjorie led a happy, fulfilling, and fully engaged life before encountering pain. A life lived at breakneck speed, juggling her passion as a self-employed nurse, her loved ones, sports, and family life. 🧑‍🧑‍🧒 Then it all started with a simple stubbed toe, like it's happened to all of us, just before heading out for a run. 🏃‍♀️ A fracture is supposed to be nothing. Yet, this injury marked the beginning of complex regional pain syndrome (CRPS), also known as reflex sympathetic dystrophy. The pain took hold, intensified, and, after a bout with long COVID that further aggravated the situation, it eventually spread to her leg and then her hip. 😱 In this descent into hell, a pain specialist asked her if she was ready to lose her job, her leg, and her family. Then he gave her an ultimatum: she had to stop working. 😳 The trauma caused by this blunt announcement left Marjorie stunned. Years later, she would have to wait for EMDR therapy to finally be able to put words to what she had experienced. 😢 "I wish I had been cared for the way I cared for my patients." That's all Marjorie had hoped for. 🫂 It's also what led her to a clinic in the United States, thanks to an online fundraising campaign. There, she found much more than just an improvement in her symptoms: hope, immense solidarity, and the possibility of a gentler life. 🤗 Today, Marjorie is learning to live with this unique reality: being a "caregiver being cared for." A dual perspective on illness that brings as many rewards as challenges. ☀️ Through her words, she recounts this rollercoaster of a life, a daily rollercoaster: a reality so familiar to so many people living with a chronic illness and an invisible disability. "It's thanks to my daughter and my husband that I continue this constant battle." ✊ For a long time, Marjorie saw herself as weak because of her hypersensitivity. Yet, as she shares her story with us, her perspective on herself has profoundly changed… 🥰 Do you see our page? Subscribe to our YouTube channel, like this resource and share your experience in the comments. All episodes of our podcast Les Invisibles are also available on the podcasts: https://podcast.ausha.co/les-invisibl... 🎧 👉 Subscribe 𝗹𝗲𝘀 𝗿𝗲́𝘀𝗲𝗮𝘂𝘅 𝘀𝗼𝗰𝗶𝗮𝘂𝘅 Instagram:   / les_invisibles_podcast   LinkedIn:   / association-lesinvisibles   👉 𝗘𝘁 𝗱𝗲́𝗰𝗼𝘂𝘃𝗿𝗲 𝗻𝗼𝘁𝗿𝗲 𝗮𝗰𝘁𝗶𝗼𝗻 𝘀𝘂𝗿 𝗻𝗼𝘁𝗿𝗲 𝘀𝗶𝘁𝗲: https://www.lesinvisibles.ch