YOPD Panel: Navigating External Expectations With Parkinson's

Join us for a conversation about navigating the external expectations that people with young-onset Parkinson’s disease uniquely face. About our panelists: Miguel Sanchez worked as an Aviation Electrician for the Coast Guard in his 20’s, and was honorably discharged in 1992. He then worked as a film and TV lighting technician before taking an early retirement in 2015; five years after his diagnosis. He loves spending time with family, road trips, storytelling, reading, writing, and photography. Nathan Ward is a 38-year-old husband and father of two. At the age of 26 after being diagnosed with PD, he went into years of depression and decline. Since 2017, his mission has been to help himself and others live, think, and move well with this disease. He serves as lead trainer at MotorvationUSA; drawing from skills he picked up as a lifelong athlete, former 911 dispatcher, and exercise pro with PD to empathetically aid clients in rediscovering vigor for life. Patrice Rifkind worked as an audiologist for many years — retiring at 60 due to her increasing symptoms of PD. She lives in Santa Rosa, CA, with her husband Ken, closer to the family! She exercises almost daily, serves as a PD mentor, and participates in several support groups to help others stay active. A Parkinson's Community Los Angeles (PCLA) "Let's Talk Parkinson's" online live program from April 11, 2024. www.pcla.org. ----------------------------------------------------------------------------------------------------------------------- 00:00 Intro 00:55 Panelist Introductions 03:04 Tell us about your diagnosis - how did it affect you? 14:35 How did your diagnosis impact your family/kids? 20:05 Accepting help 24:17 Communicating about Parkinson’s with loved ones 24:48 Mental health & your Parkinson’s diagnosis - how to navigate 29:11 Assistive devices 34:41 Communication & Speech issues - ways to help 38:25 Things you want to share with someone who is newly diagnosed 42:23 Medication changes: generic vs. not 45:11 Going to people’s houses and staying social with PD 47:38 Freezing help secrets 50:30 The importance of journaling and tracking symptoms 51:37 Closing sentiments 54:34 Outro ----------------------------------------------------------------------------------------------------------------------- 🎥 Related Content: Let's Talk Parkinson's Online Events Playlist:    • "Let's Talk Parkinson's" Online Events   Connect with PCLA: 👉 Website: www.pcla.org 👉 PCLA Blog: https://pcla.org/blog/ 👉 Instagram:   / parkinsons.la   👉 Facebook:   / parkinsonscommunityla   👉 Twitter:   / pdcommunityla   Parkinson's Community Los Angeles is a non-profit organization. If you enjoyed this free program, please consider donating to PCLA on our website at https://pcla.org/donate/. PCLA's online events are intended as an informational and educational resource for the Parkinson's community. Always consult with your healthcare team for medical and treatment advice. The views and opinions expressed by presenters and participants do not necessarily reflect those of PCLA. Sponsorship support does not influence PCLA's content perspective or panelist selection. #parkinsons #parkinsonsdisease #pcla