LC-FAOD: A Global Community

When you live with a rare disorder like an LC-FAOD, it can feel lonely. But you are not alone. Hear from members of the LC-FAOD community around the world about their experiences, how they manage the condition, and the importance of staying connected with others for support. Long-chain fatty acid oxidation disorders (LC-FAOD) are a group of rare conditions that impair the body’s metabolism from breaking down certain fats from food into energy. Other LC-FAODs include Carnitine palmitoyltransferase (CPT I or CPT II) deficiency, long-chain 3-hydroxy-acyl-CoA dehydrogenase (LCHAD) deficiency, and trifunctional protein (TFP) deficiency. Read and listen to other rare disease experiences at UltraRareAdvocacy.com: https://ultrarareadvocacy.com/rare-ex... Follow us on... Facebook:   / ultragenyx   LinkedIn:   / ultragenyx-pharmaceutical-inc-   #faodailcreation #LCFAOD #FattyAcidOxidationDisorders#RareDisease #RareStories