MOGAD 6 Years Later: Stable Doesn’t Mean Symptom-Free

Book a 1:1 support call with me: https://mymyelitis.com/work-with-me/ What is it really like living with MOG Antibody Disease (MOGAD) long-term? In this video, I reflect on 6 years with MOGAD including symptom fluctuation, fatigue, and what “stability” actually means. I was diagnosed with MOGAD six years ago. Since then, I’ve learned that being “stable” doesn’t necessarily mean being symptom-free. In this video I talk about: – Fatigue that isn’t solved by rest – Cognitive changes – Reduced tolerance for stress – The emotional side of living with uncertainty These are aspects of long-term neurological conditions that don’t always show up on MRI scans but that doesn’t mean they aren’t real. I also mention a MOGAD patient fatigue survey I worked on in collaboration with The MOG Project, which was later developed into a published research paper exploring lived experience of fatigue. Check it out here - https://mymyelitis.com/mog-antibody-d... If you’re recently diagnosed or trying to make sense of symptom changes, I’m currently running a small 1-to-1 guidance pilot focused on lived-experience education and orientation. This is not medical advice and does not replace your healthcare team. You can email: [email protected] for more information. ============================================================ 🔗LINKS🔗 💻 (Website): https://mymyelitis.com/ Subscribe to our Email List and get access to the MyMyelitis Community Discord channel - https://mymyelitis.com/community/ 📱(Social Media) Tiktok:   / mymyelitis   Facebook:   / mymyelitis   Instagram:   / mymyelitis   Twitter:   / mymyelitis   📧(Enquiries): [email protected] #MyMyelitis #MOGAntibodyDisease #MOGAD ============================================================ DISCLAIMER – The information on this channel is for informational purposes only. We ask you not to rely on this information and consult an appropriate healthcare professional before making any changes to your lifestyle, medication/treatments and physical exercise/programmes. We advise you to always seek medical advice from qualified healthcare professionals ahead of using any information on this channel and the contents of this channel should never be used as medical advice. Do not disregard any qualified medical advice ahead of the information provided on this channel. The contributors to this channel do not have experience in practising in either medication or healthcare and none of the information provided should be regarded as medical advice. The information provided here is often found from a variety of sources and the legitimacy and/or accuracy of these sources cannot be guaranteed. These sources could also become unreliable or outdated as new information about the conditions is found or circumstances change due to the nature of this field. We urge you to take this into consideration when reading the information presented on this channel. ============================================================