I’M ALLERGIC TO THE SUN | living with Erythropoietic Protoporphyria (EPP) | my rare genetic disorder
I’M ALLERGIC TO THE SUN | living with Erythropoietic Protoporphyria (EPP) | my rare genetic disorder In this video I am talking about my rare condition, what it is, my experience growing up with it and a day to day process of a reaction. WARNING I will share photos which you may not wish to see especially if you’re squeamish! Please feel free to ask any questions below Xx
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Living With Acute Intermittent Porphyria (AIP)
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Finding What Works For You | Living With Erythropoietic Protoporphyria (EPP)
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Children of the Night: Young kids allergic to the sun | 60 Minutes Australia
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Building a House for Someone Allergic to the Sun | Extreme Makeover Home Edition
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Flares - A short documentary about EPP (2024)
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Vestibular Migraine
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How Gen Z and TikTok are changing the way we speak - The Global Story podcast, BBC World Service
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Addiction, NDE and Recovery-Betty
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Boy With Severe Food Allergy Can Only Eat 7 Foods | Good Morning America | ABC News
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Sjogren syndrome: Pathology review
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I taught an octopus piano (It took 6 months)
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ME/CFS: Meine Schwester liegt seit 4 Jahren im dunklen Zimmer | TRU DOKU
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2023 EPP Patient Day - Porphyria Expert Dr. Karl Saardi with Q&A Session
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Sun allergy (Polymorphous light eruption, PMLE)| Q&A with dermatologist Dr Dray
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Polymorphous light eruption and other forms of sun allergy | Ask Doctor Anne
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Will Australia's social media ban for under-16s work? - The Global Story podcast, BBC World Service
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How My Ketamine Addiction Destroyed My Bladder | Minutes With
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Liver transplantation in erythropoietic protoporphyria (EPP)
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Geschenk und Herausforderung: Edgar und seine musikalische Hochbegabung I 37 Grad
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