MY CRANIOCERVICAL INSTABILITY SYMPTOMS

I decided to film a video about my Craniocervical instability (and atlantoaxial instability) symptoms because I am having a Craniocervical fusion on 11/26/19. The symptoms we know are associated with my neck are: Headache, Nystagmus, Eye pain, Visual changes (Blacking out vision and light flashes), passing out/eyes rolling back, light sensitivity, Falling, Decreased strength in right side of my body, peripheral neuropathy, numbness and tingling in limbs, difficulty breathing when laying down, can't fully raise up right arm, swallowing problems, Face tingling, fever (poor temperature regulation), Ringing in ears, Full body muscle cramping, twitchy/shaky muscles, dizzy/vertigo, hand tremor, confusion. I do NOT know 100% that those symptoms are all related to my neck just those are the ones my doctor have told me are likely related to my neck. Things that might be connected include: Super sweaty hands, nausea, constantly feels like I am falling over and spine crunching over, horrible balance walking like a chicken, feet turning red/purple, legs giving out, numbness and pain in feet, peeing problems, backs of legs are tightening, can't walk on heals, can't walk heal to toe. He gave us some papers about Cervical Medullary Syndrome which I looked up and is basically a term that categorizes the symptoms which are coming from my instability and the results of my skull pressing on my brainstem. SOCIAL MEDIA: Instagram: https://www.instagram.com/mysteryelle... https://www.instagram.com/ellen.inouy... This was filmed 11/12/19 #EhlersDanlosSyndrome #CraniocervicalInstability #AtlantoaxialInstability