Bladder Cancer and Spina Bifida Dec 2025
This video features Mary Dobson, MA, BA, AEA, an adult born with Spina Bifida–Myelomeningocele and a recent survivor of stage 4 metastatic bladder cancer, alongside Jonathan Routh, MD, pediatric urologist and health services researcher at Duke University. Together, they discuss diagnosing and treating bladder cancer in adults with Spina Bifida, the unique risks faced by this community, and the benefits and limitations of current screening approaches. Requested by adults with Spina Bifida and designed for caregivers, advocates, and clinicians, the session blends Mary’s lived experience with Dr. Routh’s clinical expertise to offer a clear, grounded look at risk factors, treatment options, and informed decision‑making around screening.

▶︎
Coming to Terms with Death in Spina Bifida

▶︎
Coping with Shifts in Medical Needs and Coverage: What Adults with Spina Bifida Want You to Know

▶︎
Community Information Session: Understanding and Managing the Effects of Ableism

▶︎
Identifying Myasthenia Gravis and Assessing Patients’ Treatment Response to Improve Outcomes

▶︎
New Voices for SB: Every Step Matters - Enhancing Mobility and Independence in Spina Bifida

▶︎
Surgery may be possible for some Stage 4 Lung Cancer patients - a webinar with Dr. Antonoff & Dr Gay

▶︎
Insurance Coverage for Incontinence Supplies – What Families Need to Know

▶︎
I Had No Symptoms - Margo | Bladder Cancer | The Patient Story

▶︎
Signals from the Outer Limits - What I've Learned from Slow Progressors and ALS Reversals

▶︎
New Voices for SB - Adaptive Continence Strategies at Home

▶︎
Expert ALS Insights | Diagnosis, Treatment Strategies & CME Credit

▶︎
Unlearn Negative Thoughts & Behaviors Patterns | Dr. Alok Kanojia (Healthy Gamer)

▶︎
New Voices for SB: Catheter Choice Matters

▶︎
Growing Up After MMC Repair: What MOMS 3 Teaches Us About Young Adult Outcomes

▶︎
Congestion Management in Heart Failure | Marat Fudim, MD, MHS

▶︎
Piers Morgan Meets America's Most Notorious Child Psychopath

▶︎
2024 ALS Reversals Update by Dr. Richard Bedlack M.D., Ph.D

▶︎
Bladder Cancer 101 | Symptoms, Diagnosis & Treatment

▶︎
Navigating Sexuality with Spina Bifida: Co-Creating Resources with Youth, Families and Care Teams

▶︎
