Bladder Cancer and Spina Bifida Dec 2025

This video features Mary Dobson, MA, BA, AEA, an adult born with Spina Bifida–Myelomeningocele and a recent survivor of stage 4 metastatic bladder cancer, alongside Jonathan Routh, MD, pediatric urologist and health services researcher at Duke University. Together, they discuss diagnosing and treating bladder cancer in adults with Spina Bifida, the unique risks faced by this community, and the benefits and limitations of current screening approaches. Requested by adults with Spina Bifida and designed for caregivers, advocates, and clinicians, the session blends Mary’s lived experience with Dr. Routh’s clinical expertise to offer a clear, grounded look at risk factors, treatment options, and informed decision‑making around screening.

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Coming to Terms with Death in Spina Bifida

Coping with Shifts in Medical Needs and Coverage: What Adults with Spina Bifida Want You to Know
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Coping with Shifts in Medical Needs and Coverage: What Adults with Spina Bifida Want You to Know

Community Information Session: Understanding and Managing the Effects of Ableism
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Community Information Session: Understanding and Managing the Effects of Ableism

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Identifying Myasthenia Gravis and Assessing Patients’ Treatment Response to Improve Outcomes

New Voices for SB: Every Step Matters - Enhancing Mobility and Independence in Spina Bifida
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New Voices for SB: Every Step Matters - Enhancing Mobility and Independence in Spina Bifida

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Surgery may be possible for some Stage 4 Lung Cancer patients - a webinar with Dr. Antonoff & Dr Gay

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Insurance Coverage for Incontinence Supplies – What Families Need to Know

I Had No Symptoms - Margo | Bladder Cancer | The Patient Story
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I Had No Symptoms - Margo | Bladder Cancer | The Patient Story

Signals from the Outer Limits - What I've Learned from Slow Progressors and ALS Reversals
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Signals from the Outer Limits - What I've Learned from Slow Progressors and ALS Reversals

New Voices for SB - Adaptive Continence Strategies at Home
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New Voices for SB - Adaptive Continence Strategies at Home

Expert ALS Insights | Diagnosis, Treatment Strategies & CME Credit
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Expert ALS Insights | Diagnosis, Treatment Strategies & CME Credit

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Unlearn Negative Thoughts & Behaviors Patterns | Dr. Alok Kanojia (Healthy Gamer)

New Voices for SB: Catheter Choice Matters
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New Voices for SB: Catheter Choice Matters

Growing Up After MMC Repair: What MOMS 3 Teaches Us About Young Adult Outcomes
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Growing Up After MMC Repair: What MOMS 3 Teaches Us About Young Adult Outcomes

Congestion Management in Heart Failure | Marat Fudim, MD, MHS
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Congestion Management in Heart Failure | Marat Fudim, MD, MHS

Piers Morgan Meets America's Most Notorious Child Psychopath
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Piers Morgan Meets America's Most Notorious Child Psychopath

2024 ALS Reversals Update by Dr. Richard Bedlack M.D., Ph.D
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2024 ALS Reversals Update by Dr. Richard Bedlack M.D., Ph.D

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Bladder Cancer 101 | Symptoms, Diagnosis & Treatment

Navigating Sexuality with Spina Bifida: Co-Creating Resources with Youth, Families and Care Teams
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Navigating Sexuality with Spina Bifida: Co-Creating Resources with Youth, Families and Care Teams

Focused Ultrasound Treatment for Essential Tremor - UNC Neurosurgery
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Focused Ultrasound Treatment for Essential Tremor - UNC Neurosurgery