My daughter with Cornelia de Lange Syndrome
Remy was born in 2021 with a rare syndrome called Cornelia de Lange Syndrome (CdLS). She was a tiny 2 lbs 13 oz at birth and is known among her doctors for being "medically mischievous". Remy is often seen with her parents, her older brother and sister, her baby brother, and her two labradoodles. Thanks for coming to meet Remy!

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Avynn's Story Part 1 | Life Story of a Medically Complex Baby | Cornelia De Lange Syndrome

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Police Find 6yo and 10mo Left Alone at 1 AM for 3+ Hours

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Girl Has Condition Only About 100 People in The World Have

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Life without solid food – Edda's illness is barely researched | SAT.1 Breakfast Television

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My Friend with Cornelia de Lange Syndrome (Altered Genes)

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A Dying Daughter’s Final Days with Her Single Father

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CdLS National Conference - Orlando 2016

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Family adopts 5 boys with Down syndrome: A Home Full of Love
![CORNELIA DE LANGE SYNDROME (CdLS) [ 0-12MOS JOURNEY]](https://i.ytimg.com/vi/hLUKXDpV-Dc/hqdefault.jpg?sqp=-oaymwEjCNACELwBSFryq4qpAxUIARUAAAAAGAElAADIQj0AgKJDeAE=&rs=AOn4CLC55b76bQ9szIAhm23eRrGWAT8gDg)
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CORNELIA DE LANGE SYNDROME (CdLS) [ 0-12MOS JOURNEY]

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Isabel (27) zieht ihr Kind mit Down-Syndrom alleine groß | TRU DOKU

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Freya’s birth story Cornelia de Lange Syndrome

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A Happy Kid who Doctors Recommended Terminating (Cornelia de Lange Syndrome)

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The Boy Who Won’t Eat | Diagnosing Autism | Born Naughty? | Origin

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Sophie - Ein göttliches Geschenk - Leben mit Down-Syndrom

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Meet 8 Of The Rarest People In The World | BORN DIFFERENT

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CdLS Dads: Loss of a Child-One Year Later

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The FORBIDDEN Life Of Women In Afghanistan In 2026. I Was SHOCKED! 🇦🇫

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Daily Routine with My 6mo old CDLS Baby | Cornelia de Lange Syndrome

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Raising Foster Child with Cri du Chat: The Cook Family

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