My daughter with Cornelia de Lange Syndrome
Remy was born in 2021 with a rare syndrome called Cornelia de Lange Syndrome (CdLS). She was a tiny 2 lbs 13 oz at birth and is known among her doctors for being "medically mischievous". Remy is often seen with her parents, her older brother and sister, her baby brother, and her two labradoodles. Thanks for coming to meet Remy!
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Avynn's Story Part 1 | Life Story of a Medically Complex Baby | Cornelia De Lange Syndrome
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Remy & Bee - Our Love Letter to Brinlee Farris
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My Friend with Cornelia de Lange Syndrome (Altered Genes)
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Another rare diagnosis - again!
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Without My Parent's Help I Would Eat Myself To Death | BORN DIFFERENT
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Care for Rare - Hannah (full video)
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A Dying Daughter’s Final Days with Her Single Father
![CORNELIA DE LANGE SYNDROME (CdLS) [ 0-12MOS JOURNEY]](https://i.ytimg.com/vi/hLUKXDpV-Dc/hqdefault.jpg?sqp=-oaymwEjCNACELwBSFryq4qpAxUIARUAAAAAGAElAADIQj0AgKJDeAE=&rs=AOn4CLC55b76bQ9szIAhm23eRrGWAT8gDg)
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CORNELIA DE LANGE SYNDROME (CdLS) [ 0-12MOS JOURNEY]
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Colin Farrell Opens Up About His Son With Angelman Syndrome | PEOPLE
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CdLS National Conference - Orlando 2016
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Our diagnosis journey Cornelia de Lange Syndrome
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Freya’s birth story Cornelia de Lange Syndrome
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Rare Sisters: Beyond Batten Disease
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Cornelia de Lange Syndrome - CRASH! Medical Review Series
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Inspiring story of a teen adopting her BFF with Down syndrome
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Baby born without eyes due to incredibly rare genetic disorder
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Life without solid food – Edda's illness is barely researched | SAT.1 Breakfast Television
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Study of Maternal Deprivation | Before and After Therapy
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Girl Has Condition Only About 100 People in The World Have
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