VIII Encuentro de Pacientes con Hipoparatiroidismo

🦋 8th Annual Meeting of Patients with Hypoparathyroidism | AECAT 📍 Live from CaixaForum Madrid 📅 May 27, 2026 | 6:00 PM AECAT is holding its 8th Annual Meeting of Patients with Hypoparathyroidism, a leading annual event for people with hypoparathyroidism, their families, healthcare professionals, and anyone interested in learning more about this rare disease. In observance of World Hypoparathyroidism Day (June 1), this meeting will bring together expert professionals to address the main challenges related to the diagnosis, treatment, follow-up, and quality of life of people living with this condition. ✨ This year, we will also be presenting two important initiatives: 🟣 The Hypoparathyroidism Observatory, an initiative launched to generate knowledge and contribute to improving the healthcare and social support of people with hypoparathyroidism. 📊 Study Results: “The Experience and Quality of Life of People with Hypoparathyroidism in Spain,” a study analyzing the real impact of the disease from the perspective of those living with it. PROGRAM 6:00 p.m. | Institutional Welcome • Arantxa Sáez, President of AECAT • César Hernández, Director General of the Common Portfolio of Services of the National Health System and Pharmacy at the Ministry of Health 6:10 p.m. | Hypoparathyroidism: What it is and how it is treated • Dr. Juan José Díez Head of the Endocrinology and Nutrition Department at Puerta de Hierro University Hospital in Majadahonda 6:20 p.m. | Presentation of the Hypoparathyroidism Observatory • Carmen Villar, Vice President of AECAT 6:25 p.m. | Presentation of Study Results “The Experience and Quality of Life of People with Hypoparathyroidism in Spain” • Yolanda Rueda, CEO of Nephila Health Partnership 6:45 p.m. | Multidisciplinary Debate Is it possible to meet the demands of patients within the context of our healthcare system? Moderator: • Arantxa Sáez, President of AECAT Participants: • Dr. Débora Acín, Bariatric and Endocrine Surgeon, Fuenlabrada University Hospital • Dr. Roberto Alcázar, Nephrologist, Infanta Leonor University Hospital and member of the Spanish Society of Nephrology (SEN) • Dr. María Cortés, Associate Head of Endocrinology and Nutrition, Ruber Juan Bravo University Hospital • Dr. Juan Antonio López, Family Physician and Member of semFYC 7:30 p.m. | Farewell • Arantxa Sáez, President of AECAT 🔔 Subscribe to the channel and set a reminder so you don't miss the live broadcast. More information about AECAT: www.aecat.net #Hypoparathyroidism #HypoPT #AECAT #WorldHypoparathyroidismDay #RareDiseases