투병vlog | 희귀질환만 5개 가진 의료인 봤어?💉 난 봤어..😂

I've written this because some of you are curious about my illness. Here are just a few of the rare diseases I've been diagnosed with: PBC (Primary Biliary Cirrhosis) Sarcoidosis involving the lungs UC (Ulcerative Colitis) Selective IgG subclass deficiency Protein S deficiency +Apex syndrome (FOXP3 deletion, additionally diagnosed in March 2025) In addition to these, I also have a high fever every day, asthma, and recently, anemia (unrelated to bone marrow abnormality) that requires a blood transfusion due to a plummeting hemoglobin level. It's a very diverse body, isn't it? 😂 So, I'm following up with the Rare Disease Center, Hematology and Oncology, Pediatric Immunology, Precision Medicine, Gastroenterology, and Respiratory Medicine. I've heard that the only way to cure all of this is a hematopoietic stem cell transplant, but my condition isn't good right now, and I'm constantly being diagnosed with additional diseases, so I can't proceed. I'm working hard, including reanalyzing my cells with NGS and conducting research at Seoul National University and KAIST. Some people in the comments are mistaking my condition for leukemia, and I've also received several DMs asking what illness I have, so I've compiled it here! I hope this answers your questions. 😳 Thank you for stopping by my otherwise uneventful day today. 🫶🏻💖