Malattie rare: i pazienti si raccontano
#WorldRareDiseaseDay #RareOnline Three people, three different stories, three ways of being rare. We interviewed three patients with different rare diseases to learn how they discovered they had their condition, how they cope with it, and how they manage it in their daily lives. A way to raise public awareness about rare diseases through the voices of those who experience them every day, with both positive and negative implications. Because alone we are rare, but together we are unique.

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Malattie rare, la storia di Sara che lotta per la sua Annalisa

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Alessia's mother, who suffers from a rare disease: "The diagnosis is a blow, but then you have to...

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The French Do Not Care About Work

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The New Face of America: Inside the Second Great Depression

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L'Ora Solare (TV2000) Il ricordo di Sammy Basso: "Un amico prezioso, un testimone di fede"

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Miastenia grave: che cos’è, sintomi, impatto sulla qualità di vita

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If You Have These 5 Traits, You Are Far More Protected From Dementia

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Encountering a Rare Disease | Laura Mazzanti | TEDxBologna

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The Lethal Drug Trial That Turned Men Into Elephants

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I Lived Another Life In a Coma | It Happened to Me

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LA MALATTIA DI HUNTINGTON_LIRH

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Rari in Rete: Giornata Mondiale delle Malattie Rare

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“C’è qualcosa di peggio dell’essere malati rari: è il percorso per arrivare a scoprirlo”

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Verletzte obdachlose Menschen – hier bekommen sie Hilfe | rbb24 explorer

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Rare Sisters: Beyond Batten Disease

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Gattuso e la miastenia oculare (29/01/2018)

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Padova, la storia di Lavinia, la sua malattia rarissima e come la vivono i suoi genitori

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Il Testo Unico sulle Malattie Rare è Legge

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Little Samuel has a nameless disease: there are only 20 cases in the world. Parents: "Help us"

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