The Faces of CLN1 Batten Disease — 2026 | International Batten Disease Awareness Day #battendisease

This video showcases many of the amazing children who have been diagnosed with the CLN1 variant of Batten Disease. Each year, we produce a video in honor of International Batten Disease Awareness Day on June 9th to continue shining a light on these amazing children and to keep stressing the need for research funding and support. This video was organized and produced by Jennifer and Philip Palermo, with photos gathered from other CLN1 Batten Disease families. Original music by Philip Palermo, who was going for a synth-heavy, peppy, Taylor Swift-esque vibe (in case anyone's curious). For general info on Batten Disease and/or to donate, visit: Batten Disease Support, Research, & Advocacy Foundation: https://bdsrafoundation.org #battendisease #neuro #raredisease #brain #medical #science #cln1 #ppt1 #rarediseaseday #motivation #parenting #awareness #disability #research