Tough night for Freya | House Tour
Hi I’m Marci. Mom of 4 kids. The youngest is Freya. She has a rare syndrome called Cornelia deLange Syndrome. Come along on this wild life as we figure out disability parenting a child with medical complexities and a limb difference. All while having fun and enjoying life.
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Does she need a gtube | GI appointment
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Life expectancy of CdLS | Freya crawling
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Freya’s birth story Cornelia de Lange Syndrome
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Bates Family IMPLODES: Katie Bates EXPOSES Painful Childhood Secret & Her Family's Ultimate Betrayal
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Ursula, Marc, and their four children live in an old house spanning 90 square meters | ARD Room Tour
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The Silent Child | Oscar® Winning Short Film
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I'm Growing A Second Skeleton | Living Differently
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Watch his reaction when he’s told he’s a GOOD BOY for the first time 🥹
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Große Familie - Eltern, Geschwister, Oma, Au Pair kümmern sich um Drillinge
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Packing for my disabled child for a roadtrip
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Morning routine Mom of 4 one child with a disability
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Happy school day after a scary weekend | childhood seizures
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Jon Gosselin’s Daughter Hannah EXPOSES the Truth About Her Mother!
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Will she talk? How tall will she gets? All your CDLS questions answered
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Study of Maternal Deprivation | Before and After Therapy
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Das Kind, das die Abtreibung überlebte | WDR Doku
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Day in the life of Freya’s administrative assistant | appointments, paperwork, and macarons
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Milestones for my disabled child vs typically developing kids
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Meet The 'Twins' Born With Different Dads! | This Morning
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