World Scleroderma Foundation and the role of research

Why is research so important in the fight against scleroderma? In our conversation with Professor Marco Matucci-Cerinic, President of the World Scleroderma Foundation, we explored what it means to live with scleroderma, the challenges patients face every day, and the vital role research plays in improving their lives. Research is not only about advancing treatments. For rare autoimmune diseases like scleroderma, it is also about creating awareness, increasing visibility, and giving a voice to people living with conditions that often remain unseen. One message emerged clearly from our discussion: caring for the hands is a fundamental part of managing the disease. This is why gloves are much more than an accessory—they are a daily necessity and a powerful symbol of the stories behind our Hand Couture project. 🎥 Watch the full interview to learn more about scleroderma and the impact of research. 🧤 Discover the Hand Couture project: worldsclerofound.it/gloves #HandCouture #Scleroderma #SclerodermaResearch #WorldSclerodermaFoundation #RareDiseaseAwareness #HealthcareInnovation #SocialImpact #MedicalResearch