Preparing Data for Submission to the National Data Archive (NDA)

Preparing Data for Submission to the National Data Archive (NDA) featuring Rita Butterfield PhD and Scott Tebbetts. All grants to NIH now require that data be shared with the National Data Archive, which was set up by the NIMH with the goal of providing deidentified data sets to researchers, policymakers, and the public. The process involves three steps: creating a data sharing agreement, creating data structures, and submitting data. In their work with Dr. Amy Conroy, Scott Tebbetts and Rita Butterfield have gone through the first two steps on three projects and the third step on one project. In this presentation, they share what they have learned and some tips and tricks to make the process as streamlined as possible. Follow the UCSF Division of Prevention Science on Social and be sure to like, share, and subscribe. Sign up for our quarterly CAPS/PRC e-newsletter - https://lp.constantcontactpages.com/s... UCSF Prevention Science Linkedin   / ucsf-dps   Bluesky - https://bsky.app/profile/ucsfpreventi... Scott Tebbetts has over 26 years of experience working as a study coordinator/policy analyst at CAPS. He has worked on studies focused on HIV prevention for young gay and bisexual men across the US and internationally with Dr. Susan Kegeles and Dr. Greg Rebchook. He currently serves as the study coordinator for Dr. Amy Conroy’s research focused on developing an economic and relationship-strengthening intervention to reduce alcohol use among HIV affected couples in Malawi. Rita Butterfield PhD is a social psychologist with a research focus on couples and health behaviors. She taught psychology and human development at Sonoma State University of over a decade. At the University of North Carolina, she worked on studies designed to understand the decision-making process for genetic testing. She now works from her home in North Carolina on Dr. Amy Conroy’s projects in Malawi and South Africa. A CAPS Methods Core Town Hall. Recorded Thursday, February 20th, 2025. 0:00 Introductions 3:22 What is the NIMH Data Archive (NDA)? 4:55 Grant Applications 6:44 Sample Informed Consent Langauge 9:31 Register with Clinical Trials dot org 14:01 Data Structures 19:15 Data Curators 24:12 Parting Tips 25:47 Submitting Data to the NDA 31:58 Data Structure: Household Goods 36:01 Validate Data 39:46 Submit Data 41:53 Q & A