Hospitalized from Covid - 🤒 - rare disease vlog
Was not expecting this to be our next vlog, but that's how it goes sometimes 🤒 I was working on a new fundraising venture (art prints & more!) when Damian got super sick - I took him to the ER and it turned out he had Covid. We've been hospitalized from colds and RSV and things like that before, so it was no surprise when they said we needed to be admitted. I was so so grateful Damian could get all the specialty care he needed... especially since I got really sick too. Even just watching helps our campaign, so whether you've happened across our video by chance or have been fighting with us on our journey - I am so grateful you are here. We are doing this. ________________________________________________ 💙ABOUT DAMIAN💙 Damian is fighting a terminal genetic disease called ASMD/Niemann-Pick Disease Type A (sometimes referred to as "Baby Alzheimer's") and we're determined to do WHATEVER IT TAKES to raise the $3 million needed to expedite the development of treatment and save his life. Every single dollar makes a difference and has gotten us so far. If you can, please consider a small donation which can be made by visiting SaveDamian.com (there are 4 ways to donate linked at the top!) You can also help us #SaveDamian by sharing his story!!! We are SO CLOSE to finally defeating ASMD, for Damian and every child given this death sentence. Thank you 💙 ________________________________________________ 💙 PLEASE HELP 💙 GoFundMe: https://gofund.me/24dc59ae Blog & More: https://www.SaveDamian.com ________________________________________________ 💙 AS SEEN IN THIS VIDEO 💙 (Commissionable links) Car seat head strap: https://amzn.to/3Xb9Em3 ________________________________________________ 0:00 - Intro 0:52 - Going to physical therapy 1:30 - My new fundraising venture 2:15 - ER 4:57 - Day 1 7:15 - Day 2 9:37 - Day 3 12:02 - Day 4 14:15 - Discharged! 11:25 - Adding the skin 14:00 - Making the flyers 15:00 - Fundraising update!

Damian gets a hospital bed 💙 Rare Disease Vlog 💙 Medical Mom Life

Damian's G-Tube Surgery (& our hospital life!)

Timing out Tuesday's strong storm chance

My baby Damian, BEFORE the diagnosis

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My toddler did a sleep study - SPOILER... we got no sleep

Damian's FIRST DOSE of (potentially) life-saving treatment!!!

RYLEE HAS TYPE 1 DIABETES! *EMOTIONAL*
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Life without solid food – Edda's illness is barely researched | SAT.1 Breakfast Television

Corbin Hospitalized!

