Journeys Through Pulmonary Fibrosis Ep1: When Scleroderma Affects the Lungs
What is scleroderma lung disease? Learn how to spot pulmonary fibrosis symptoms, SSc-ILD, and early warning signs. Watch host Ilaria Galetti and our inspiring guests discuss the importance of early diagnosis, patient advocacy, and their unwavering commitment to the pulmonary fibrosis (PF) community. The episode features: Ilaria Galetti, Vice President of FESCA (Federation of European Scleroderma Associations), a patient who has been coping with systemic sclerosis for almost 30 years and received a double lung transplant in 2025. Ruth Ajayi, a patient advocate who has been living with scleroderma and interstitial lung disease (SSc-ILD) for 10 years, sharing her daily struggles with severe breathlessness and her journey to finding a local support group. Dr. Cosimo Bruni, a leading rheumatologist and Senior Scientist at Zurich University Hospital, who explains how is scleroderma diagnosed, the clinical impact of skin scarring, and why we must identify progressive chronic lung disease early. Subscribe to our YouTube channel and to the ‘Journeys Through Pulmonary Fibrosis Podcast’, available on all major podcast platforms. If you would like more support about the subjects discussed in this video, click on the links below for different patient organizations featured in this and previous episodes of the series. Featured Organizations & Resources: Federation of European Scleroderma Associations (FESCA): https://fesca-scleroderma.eu/ Life with Pulmonary Fibrosis: https://patient.boehringer-ingelheim.... More than Scleroderma: https://www.boehringer-ingelheim.com/...

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